School: My First Week Back (At A Glance)

On Monday, my first day back, my friends were SO happy to see me. They surround me in a bubble shape to protect my still fragile back, and one of my friends goes in the elevator with me (Either E or L). I get to leave for lunch early. I have a rolling backpack. An elevator pass!! When I got to band, the boy who had gotten 2nd chair (he had gotten 1st chair for my surgery reasons), wanted to sit in 1st chair Clarinet, but I joked around with him about how I had gotten first chair clarinet, and it was under certain circumstances when he got my chair. He jokingly gave me a glare as we got our stuff out. On Tuesday in Band, my friend R mentioned that the reason she wasn’t here Monday was because of her scoliosis. Her’s had gotten bad enough for a brace. I gave her a soft hug and told her it would be okay.

On Monday-Wednesday, I came in for a 9:00am-12:15pm session which included Band, Math, Lunch, and then more Math. Thursday-Friday I was there for a 12:15pm-3:30pm session which included English, Science, and Social Studies. On Thursday, though, we had a field trip to our local high school for a Star Gazing activity. Half way through it, though, My back started to hurt pretty badly, because I was moaning quietly, but loud enough for my friends L and K to notice. They asked if I was okay. I told them, “There isn’t anything we can do about it now, but no.” On the bus, they wanted to tell my Math/Science teacher that I was hurting. I waved it off, but it was bad enough later in Science that I had to call Mom and go home. I later rested in my room and the pain eased up.

Friday, I was there for the entire 3hrs 15mins. My English Teacher was glad to have me back. Saturday, yesterday, we went to a scoliosis support group almost 2hrs away! My back didn’t start to hurt till we were at our hotel. It was just Mom and me. We had a lot of fun. So that’s my first week back to school at a glance!!

 

-Titanium Girl 😀

Build-A-Bear

Today we are going to Build-A-Bear Workshops. My Grandma gave us each some money for Christmas to spend for ourselves. So, yesterday I decided we could go to Build-A-Bear. At Thanksgiving, my little cousin gave me a bear with hearts all over it’s plush body. She even has a matching one. They each have pink headbands and white and silver dresses, with matching fluffy white boots. They each smell of strawberries, and they play Let it Go from Frozen if you press the right foot. So now I get to make my very own!!

Anyway, I got up super early, earlier than my brother, and played on my tablet. When he got up, he asked if he could play on my tablet, instead of his own. He wanted to play something I had bought that he couldn’t yet. I handed it over, asking for his. I played on his for awhile, then ate a few mini powdered doughnuts.  Mmm, they were good. He finished his game and we switched our tablets back. Then he got on the bus, and I typed this on my tablet.

My pain control is better now. Mom and Dad bug me a lot about how I stand, how my arms fall, how I walk, and how I hold my hip.  They bug me about what I eat, and they weigh me every morning.  They also bug me about school work. But we also have good times.  We all got to see Mockingjay Part 1 on Tuesday, and we liked it.  I want to see it again, a million more times!

Sorry I haven’t been posting. I’ve wanted to, but I just never got around to it until now. See ya!
Titanium Girl

Home Again

Finally. We made it home at around 1pm, and I was so happy. 🙂 I ate McDonald’s chicken nuggets and fries for lunch, then had the slightest bits of Hershey’s Cookies and Creme chocolate bar. I napped for around 2hrs while watching a movie. I suspect that it was almost over, but I didn’t see the end either way. I started to have some serious back pain from my 12-14in. incision. We got some pain meds into me, but I was still in super bad pain.

I ate half of a bowl of mac’n’cheese for dinner, then took my pain pill. I played around on my computer, then I got in my bed with Mom and we watched several episodes of one of my favorite shows, Good Luck Charlie. I’m planning on watching a few more and falling asleep to them.

Later this week, I get to see Mockingjay Part 1 or sometime soon. I’ve read all three books, seen the first two movies (the only ones available on BluRay/DVD).

I think I’m gonna go watch those episodes now. And fall asleep in the process. 😉

-Titanium Girl

Surgery #1

This morning, I woke up at around 7:15 to get my brother on the bus for his school and say goodbye. He called today (instead of Veteran’s Day) “National Getting Revenge on Twisted Spines Day” Mom and I laughed. He didn’t seem to worried about how I was having surgery.

So this morning I had to take a shower, a normal shower, with an added germ-killing soap. Mom helped me apply it to the places that I couldn’t reach, like my back and the backs of my legs and neck. So we have to be at the hospital by 11:30 am, as Dad posted. The surgery doesn’t start till 1 pm, but that’s just when they take me back.

Again, I am SO hungry. I can’t eat anything until after the surgery is done. Yesterday I ended up eating 6/8 waffles in the box and a leftover bowl of applesauce from Tumbleweed. I finished my 8 8oz glasses by 5, one hour ahead of my schedule. I fell behind on the 12-3 glasses, but I caught up 3pm-4pm. I’ll probably end up eating ice chips after the surgery is finished.

When I feel up to it, though, I’m going to color!!! Mom has this HUGE coloring pad for me to use, and she bought me a box of 152 Crayola Crayons!!! I’ve decided that I’m going to color in the car on the way there. I’m going to give some of the sheets to my friends after they’re colored.

The good things about this week are: I GET CANDY!!!!!! I don’t have to do a Reader’s Notebook. I don’t have to practice my clarinet!! Which ROCKS!! So yea. I have some benefits.

Unfortunately, I don’t get to spend time with my black, soft, warm, snuggly cat. She likes to yell at people when I’m not around. Mom and Dad say that “I’m her person”. She snuggles in my lap all the time. She licks my hand playfully and will grab it, with both paws, and lick my hand until either it’s soaking and/or I have to pull my hand away. We’ve come to the conclusion that she’s going to be VERY loud while I’m gone.

And I’m going to miss her, too.

-Titanium Girl

 

The Amazing-Ness Of Real Food

Earlier, Mom said that the doc had called and said that my surgery is scheduled for 1 pm tomorrow afternoon. Today, however, I get to eat bready things that aren’t see through until 2 pm. Who knew that REAL FOOD tasted SO GOOD????!!!! I ate 3 waffles (each had two in them) and a bowl of applesauce leftover from Saturday’s Tumbleweed dinner. At 2, though, I go back to eating nasty, unreal lemon drops, horehound drops, chicken broth and Jello. I still have to drink 8 8oz glasses of water all day. Dad said that I should have one glass every hour starting now. I calculated it, and it looks like I’m going to be drinking until 7 pm, when I should have finished the 8 8oz glass thing. I don’t want to have to start over from yesterday, where I had 6 8oz glasses. I WAS SO CLOSE!!!!!!!!! Dad and I are going to play Mario Kart today on the Wii. He told me we would later. It’s going to be SOO fun!

-Titanium Girl

Rain Delay- Titanium Girl

Last night we had a call from Dr. C. He said that the hospital didn’t have enough beds, so we would postpone my first surgery unless he could find a different bed for me. And I was like, “well, why not just put me in a regular room?” And Mom was like, “because they have to monitor you after surgery given what they are doing.” In my mind, I really wish that some miracle would happen to some sick kid so that I could just have a bed in the ICU.

So this morning I got up early at 6:45 am just for the heck of it. Mom was like, “why are you up so early?” And I was like, “just cuz.” I wanted breakfast SOOOO badly, but I couldn’t have anything after midnight last night, just in case it happened today. I’m still REALLY hungry, but I’m sucking it up. Or trying to.

-Titanium Girl